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DetailsBink Books
260 pp. ● 5.5×8.5 $16.95 (pb) ● $9.95 (eb) ISBN 978-1-945805-83-7 (pb) Memoir Batten disease Publication date: November 2018 |
Laura has it all: a great job, a loving family, a new husband, and a house in her hometown, where she can watch her sister, Taylor, grow up. But one month after her wedding, Laura and her family receive shocking news: Taylor has Batten disease. A rare, fatal disease that will cause Taylor to go blind, suffer seizures, and lose the ability to walk and talk. There is no cure. Laura thought she’d get to watch her baby sister grow up, but instead she’ll have to watch her die.
Unwilling to take no cure for an answer, Laura founds a charity with family and friends, Taylor’s Tale, to save children with the disease. Meanwhile, Taylor starts running, completing her first race blind. Inspired, Laura, a lifelong runner, begins running in half marathons to raise money and awareness. And also to run away from the pain. Taylor’s Tale becomes a world leader in the fight against Batten disease, but not quickly enough to save Taylor. Stripped of her faith, Laura falls into a dark despair. But Taylor’s unwavering courage in the face of certain death gives Laura a renewed sense of purpose to turn her family’s tragedy into an opportunity—to ensure others won’t have to suffer as her sister has suffered. Run to the Light is Laura’s inspiring account of how she found the courage to face indescribable loss, and of what it means to really believe. |
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